Childhood Cancer Data Initiative Updates
Today, February 15, is International Childhood Cancer Day (ICCD), a global collaborative campaign to raise awareness about childhood cancer and its unique challenges, while showing support for young people with cancer and their families worldwide. NCI shares this goal today and every day of the year and commits to it through continued research in the causes, drivers, and treatment of childhood cancers and efforts to improve childhood data sharing.
The ICCD campaign quotes a World Health Organization fact on the need for childhood cancer data systems to drive continuous improvements in the quality of care and to inform policy decisions. Through the Childhood Cancer Data Initiative (CCDI), NCI is creating such a system that connects new and existing data kept in various institutions and databases and makes them more easily accessible. Doctors and researchers can then use them in treating and caring for children with cancer and to speed up research progress.
This network is the CCDI Data Ecosystem, and it includes various platforms and tools to maximize the use of the data it connects. It also keeps growing. For example, recently, more data was added from the CCDI Molecular Characterization Initiative, which has returned results to more than 600 participants.
Another way to learn more about CCDI and contribute to its progress is by attending the CCDI Annual Symposium on March 24, 2023. The symposium will gather experts from around the country to discuss CCDI’s progress and opportunities for the future. Learn more and register.
Link to Cancer Data Initiative Data Ecosystem
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